Please get in touch at press@actionpf.org for any press/media enquiries.
Public affairs
APF’s report exposes serious failings and a ‘postcode lottery’ in pulmonary fibrosis care
Charity news
APF join forces with Irwin Mitchell to shine a light on work-related pulmonary fibrosis
Support
The APF Support Line: here to help
Announcing our new 5-year strategy 2026
Press releases
Action for Pulmonary Fibrosis launches new 5-year strategy to expand support and accelerate research
Research
APF funded researcher wins prestigious award
Steve Jones becomes our new Patient President
Action for Pulmonary Fibrosis appoints its first Patient President
Tackling pulmonary fibrosis head-on: APF funds two innovative research projects
Thank you and farewell to Steve Jones and Beckie Lang
Fundraising
Go the Distance 2025
Louise's Zipwire Challenge
APF Conference Award Winners Present Research at Global ERS Congress
Meet the winners of our 2025 Summer Studentships!
Phase 2b trial for IPF cough reports positive topline results
The power of patient involvement in research
The 2025 PF State of the Nation Survey is now open!
Advancing Respiratory Research: APF Grant Winners Present at Leading International Conference
Results of landmark clinical trial offer new hope for people living with pulmonary fibrosis
Landmark Clinical Trial Offers New Hope for People Living with Pulmonary Fibrosis
New insights into lung repair: APF Conference Award supports PhD student to present IPF research internationally
Advancing Pulmonary Fibrosis Research: Insights from 2024 Summer Studentships & Exciting Opportunities for 2025
New APF funding programme for pulmonary fibrosis research
Corporate supporters double fundraising total through matched giving
Action For Pulmonary Fibrosis appoints new Director of Fundraising & Communications
New insights into lung infections in pulmonary fibrosis
Managing your lung health during Ramadan: expert insights & practical tips
New report highlights the challenges for idiopathic pulmonary fibrosis care in the UK
Apply for a 2025 BALR Summer Studentship
FIBRONEER™-ILD: Clinical trial results update and what this means for people living with PPF
AIS Raises Over £5,500 for Action for Pulmonary Fibrosis in 50km walking challenge
Call on your MP to improve PF services and address care inequalities in your area
Research rendezvous: Your donations are making a difference to pulmonary fibrosis scientists in the UK
Exciting changes ahead for NHS: APF chimes into NHS change consultation
Putting the spotlight on improving PF care in Parliament
The Grampian Support Group Raises Funds For Research
Meet the scientist behind the research: Dr Kerri Johannson
APF Forever Rose - One Year On
Fibroneer-IPF: Clinical trial results and what this means for people living with PF
‘Business Case Toolkit’
Action for Pulmonary Fibrosis appoints new CEO
In memory of James Douthwaite
Hormones, genes and lung health screening - meet our Conference Award winners
Johnnie Walker voices campaign to spot the signs and symptoms of lung scarring disease
Meet the winners of our 2024 Summer Studentships!
Jenny takes on the Cotswold Way Ultra Challenge
Alec's MBE for Services to Cricket and to People with Interstitial Lung Disease.
Men's Health Week - we're here to support you
Michelle's Kiltwalk Challenge
Remembering Pops with new heights this Father’s Day
APF launches new research Study Finder
Social Deprivation and Idiopathic Pulmonary Fibrosis (IPF)
APF is here for everyone affected by pulmonary fibrosis.
Greg Runs 5K Every Day for APF
APF welcomes new research centre for rare lung diseases
Transforming PF care starts here
Ramadan: fasting and antifibrotic medications
Upcoming webinar: Building a business case to improve ILD Services
Meet the Scientist: How I got involved in Pulmonary Fibrosis research, a medical student’s perspective
APF announces new research fellows to unravel the genetics of pulmonary fibrosis
Louise Wright CEO to step down from the charity
Apply for a BALR Summer Studentship
Research Update: Results from the PAciFY study looking at IPF-cough
Meet the scientist Dr Anna Duckworth: Pulmonary fibrosis, telomeres and me
Study Update: IPF COMFORT: A clinical trial investigating the effects of orvepitant on IPF cough
Remembering Sarah Weir OBE
Support Over the Christmas Period 2023
People with lived experience of PF at the heart of survey set to influence change
DEMISTIFI Study Webinar: What is BIG DATA? The use of patient health data in research
Meet the Scientist: Dr Laura Fabbri - APF Research Conference Awardee
Short Patient Survey for REMAP-ILD: Have your voice heard
New Chair of Trustees for Action for Pulmonary Fibrosis
Research results: the MADIET clinical trial
Meet the scientist: Dr Dominic Sykes - APF Conference Awardee
Join TeamAPF for the London Winter Walk
APF in Parliament: a first step towards change
Meet the scientist behind the research: Dr Brintha Selvarajah
New survey reveals staggering lack of awareness of killer lung scarring disease that's on the rise
Meet the scientist behind the research webinar: Dr Richard Allen
Frank cycles from Lands End to John o'Groats
East Midlands Interstitial Lung Disease Research Alliance (EMIRA) Meeting
APF welcomes NHS plans to fast-track testing for respiratory conditions like pulmonary fibrosis
Advice about possible courier issues affecting access to anti-fibrotics
How can healthcare services turnaround pulmonary fibrosis care?
2023 APF patient survey: Thank you!
APF wishes Amy Price the best of health after her lung transplant
Meet the Scientist: Georgie Massen APF Conference Awardee for ATS
Research update: Results from ZEPHYRUS-1 - A Phase 3 Clinical Trial
Meet the scientist behind the research: Dr Adam Byrne
In memory of Allan Glover
Caitlin runs the London Marathon
Meet the scientist behind the research: Dr Joe Jacob
Virtual Education Event: Finding effective treatments faster for patients with lung scarring
Walking in memory of Les Kennedy
More people living with IPF in Scotland to benefit from anti-fibrotic medication
Running in memory of Graham Brown
Over £750 donated in memory of John Green
Support groups spread across Scotland
APF Responds to Government Announcement
What are patient registries and how do they help healthcare professionals to support patients and develop treatments?
Running a PF support group: Q&A with a group leader
John Raises Funds For Research
The Cost of Living Crisis- Advice for Those Using Oxygen Concentrators
The Cost of Living Crisis- Help and Resources
Thousands of patients with terminal lung scarring given access to drugs that could prolong their lives
#OneVoiceILD
Action for Pulmonary Fibrosis BBC TV Lifeline Appeal
BBC Lifeline Appeal for APF
Barry's Walk and Cycle Challenge
Spotlight on pulmonary fibrosis in Scotland
Research Opportunity: A clinical trial treating people with idiopathic pulmonary fibrosis with the anti-acid lansoprazole (TIPAL)
Great North Run 2022
Gardner Family 10K Tough Mudder
REMAP-ILD: The future of clinical trials in pulmonary fibrosis
The DEMISTIFI Study: Understanding scarring (fibrosis) throughout the body
3000 Squats in October Challenge
Kit's Half Marathon Challenge
Sandra, Cath and Di remember Peter
Life with pulmonary fibrosis - what we've learned
Go Purple for PF Awareness Month
Focus on research: clinical trials
Dad and daughter duo take to the skies
Wellbeing: focus on nutrition
60 seconds with our President Professor Jenkins
Support group for Carers
Information and resources on current cruise line regulations in place for those on oxygen
New Support group launches in North Cumbria
APF Pulmonary Fibrosis Fellowship Funding Announcement
ACCELERATING CHANGE FOR PULMONARY FIBROSIS
Research Opportunity: A clinical trial for patients with chronic cough caused by idiopathic pulmonary fibrosis (IPF)
Dealing with rising energy prices
Meet APF scientist Dr Philip Molyneaux
Doran sisters team up with bestseller Alison Weir for amazing event
Boundaries and Safeguarding Training for Pulmonary Fibrosis Support Group Leaders
Meet APF Conference Grant Awardee Dr Jonathon Shaw
Meet the scientist behind the research: Professor Simon Johnson
Helping you to get virtual - support group leaders learn about help to get online and use virtual platforms
Meet the scientist behind the research: Professor Louise Wain
One step closer for IPF patients to access life-extending anti-fibrotic drugs
Tribute Night for Ronald Bee
Research Update: A clinical trial investigating a potential new drug for chronic cough in IPF
Katie’s fundraising project inspired by her dad Anthony!
Charities urge PM to support over 500,000 immunocompromised people to live alongside COVID-19
Walking tips from a pro
Living with pulmonary fibrosis and staying fire safe
Changes to the way patients can be prescribed pirfenidone
Janice Long
APF Fundraiser of the Year 2021
Getting involved in research: Pepe's story
Getting the Best out of Over-the-Phone Consultations
Respiratory Nurse Nancy Howard on Coping With the Cold
Getting involved in research: How taking part in clinical trials can change lives
Planning Christmas 2021
The Role of Pharmacists
A week in the life of an ILD specialist Nurse
Meet APF scientist Dr Richard Allen
IPF: The Fight Continues
Pete completes the Robin Hood Half Marathon
Covid 19 and pulmonary fibrosis research
The journey to diagnosis in patients with pulmonary fibrosis
Daniel's IRONMAN Weymouth Challenge
Graham Ellis - APF Fundraising Champion
Why become a regular giver? Ann tells us her story
Feeling abandoned? A new Pulmonary Fibrosis Carers’ Support Group is here for you…
"Clearing the air about cough" Webinar and Q&A on managing cough symptoms
Dominic's IRONMAN Challenge
Timmy's 4 Peak Challenge
Tracy's Miles and Mountains Challenge
NEW STATS REVEAL PEOPLE WITH PULMONARY FIBROSIS FEEL JUDGED FOR HAVING A PERSISTENT AND UNCONTROLLABLE COUGH
Idiopathic Pulmonary Fibrosis Poem | by Geoff Gardner
Meet the scientist behind the research: Dr Guilhem Collier
Claire's Story and Why She Became a Regular Giver
Louise and Jenny Doran | Fundraisers of the Week
Life-extending medicines accepted for use by NHS Scotland for more patients with pulmonary fibrosis
NICE announces anti-fibrotic review for IPF patients
The Impact of the Nursing Times Awards
APF launches its survey for Support Groups this week
Nicole is our Fundraiser of the Week!
Wellbeing Sessions Prove a Hit
Pulmonary Fibrosis Support Group Leaders enjoy Chi-Me taster session
Amelia and Dexter go walking
Sophie, Leanne and Angie take on Jog on January!
APF at The British Thoracic Society Winter Meeting
Sisters walking 100k
Harrison's Bored to Bald!
TaskForce release 2 years on report
APF Spotlight on Sessions
Dr Richard Allen on "Research During Lockdown"
Brierley Family December Dash | Fundraising
Thought For The Week #2 | with Chair of Trustees Steve Jones
Thought for the week | with Chair of Trustees, Steve Jones
Fundraisers of the Year 2020
Meet the scientist behind the research: Dr Anna Duckworth, University of Exeter
"Life With IPF" Podcast Released with patient Sylvia and Honey Langcaster-James
Staying Mindful Whilst Shielding
Dr Richard Allen Answers Your Questions About PF Research
Robert Hay Sets 360,000 Step Walking Challenge After IPF Diagnosis
Steve Jones, Chief of Trustees Cycles 500 Miles For APF
Janice Long joins forces with Action for Pulmonary Fibrosis for second year running
APF Sky Diving Heroes Needed
Dr Richard Allen's live webinar - Does DNA hold the key to understanding IPF?
How does your cough make you feel?
New lanyards alert others to respect social distancing for people with PF and carers
Patients call to end restrictions on drugs that prolong the lives of people with lung scarring
Inaugural Zoom meeting for the South West Peninsular was held on the 19 August 2020
Adjusting to change: a digital conversation with APF
Blackbaud Data Breach
UK PF leaders urge caution as Covid continues to ’unlock’
Carers raise concerns around the pausing of shielding
APF featured in The Guardian
Live webinar: does DNA hold the key to understanding IPF?
APF Regional Support Group Leaders Zoom Meetings Overview
Mid-Essex Pulmonary Fibrosis Group meet via Zoom on the 3 July 2020 plus an update on some fantastic fundraising activities
Sheffield Pulmonary Fibrosis Support Group - embracing technology and keeping connected during COVID-19
The Great Back Garden Run 2020
Imperial Pulmonary Fibrosis Support Network Zoom Meeting 19 June 2020
Increase in lung scarring or fibrosis, as a result of the COVID-19 pandemic.
Priority for pulmonary function tests (PFT) to early stage IPF patients.
Keeping fundraisers engaged
Carers Week with Dee Bryan
Celebrating International Nurses Day
APF coronavirus appeal
New telephone service reaches out to people with Pulmonary Fibrosis
Action for Pulmonary Fibrosis research brings hope to IPF patients and their families
A huge thankyou to our inspirational Fundraisers of the Year 2019