search Donate

6b4eb7c3-bad5-4f98-8e3e-2158172cfe64 flex-box container between col-100 0

7fb6ea93-8328-4509-aeb7-5e8bb0eae0e1 flex-box col-100 0

7fa1da47-2c81-4043-8627-e9d196cc5500 col-100 0

Join us

1520de1e-85e1-4832-bbc1-1efd721813b8 flex-box container between col-100 0

0c84afa7-3fac-4dda-9d32-a0c727e22178 flex-box col-100 0

6c36f7d1-515e-43b6-b2e8-b9d859cd0687 col-100 0

As a young, energetic and ambitious charity, we support people affected by pulmonary fibrosis and invest in research to find a cure. Do you have the passion and skills we need? We’d love to hear from you: Please get in touch.

0582178b-f5d7-4e86-a79a-173a7a8af85e col-100 1

Action for Pulmonary Fibrosis is committed to equity, diversity and inclusion.

Pulmonary fibrosis affects people from all walks of life, and we believe our team should reflect the diverse communities we support. We warmly welcome applications from people of all backgrounds, regardless of age, disability, sex, gender identity, sexual orientation, race, ethnicity, religion or belief, marital or civil partnership status, pregnancy or maternity.

760848ab-2c6d-425f-af5e-933c015e78c1 col-100 2

5f7ca987-eebf-4a0e-bfde-86edb53d52d1 flex-box col-100 1

3770d733-c537-38f1-9e12-e107b88dd25a flex-box container between col-100 0

4600718b-34f9-fa7c-6b7a-aa8ad3d26852 flex-box col-100 0

56066afc-8597-ed36-21fd-b056f768d8db col-100 0

Trustee (Lived Experience of Pulmonary Fibrosis)

Role: Voluntary, with expenses paid | Location: Hybrid (Peterborough)

chevron_rightkeyboard_arrow_up

Action for Pulmonary Fibrosis (APF) Hybrid (UK-wide) | ~4 Board meetings per year + flexible participation options

Do you have personal experience of pulmonary fibrosis and want to use your voice to shape change?

Action for Pulmonary Fibrosis (APF) is the UK’s leading charity for people affected by pulmonary fibrosis. We are looking for a Trustee with lived experience to join our Board and help ensure the voices of patients, families and carers are at the heart of everything we do.

We recognise that living with pulmonary fibrosis can be challenging. We are committed to supporting Trustees in a way that works for them, including options to join meetings remotely where needed.

Why join APF?

Pulmonary fibrosis brings complex and often challenging experiences for individuals and those around them. At APF, we work to improve support, drive research, and influence policy and care so that people affected by pulmonary fibrosis are better supported at every stage of their journey.

As a Trustee, you will help ensure that lived experience shapes our decisions, priorities and culture, influencing how we design services, set direction and deliver meaningful change.

Who we’re looking for

We are particularly keen to hear from people who bring lived experience of pulmonary fibrosis, for example as a:

Person living with pulmonary fibrosis
Carer, family member or close supporter
Someone closely affected by the condition

You do not need previous Board experience. We are looking for people who can:

Share insight and perspective to inform strategic discussions
Reflect the needs, challenges and priorities of the PF community
Ask questions, contribute ideas and challenge constructively
Work collaboratively and respectfully with others

We would also welcome, but do not require, experience in areas such as:

HR, people management or organisational culture
Fundraising, supporter engagement or community development

The role

As a Trustee, you will:

Help shape APF’s strategy and long-term direction
Ensure strong governance, accountability and financial oversight
Bring lived experience insight into Board discussions and decisions
Help ensure services, research, information and campaigns reflect real needs
Highlight barriers, inequalities and opportunities for improvement
Contribute to subcommittees or projects where your perspective adds value

Time commitment

~4 Board meetings per year, with flexibility to attend remotely where needed
Preparation time for meetings
Occasional participation in subcommittees or advisory work, depending on your interests

We will work with you to ensure participation is manageable and accessible.

This is a voluntary, unpaid role. Reasonable expenses are reimbursed, including travel and caring costs where needed.

Our commitment to inclusion

We want our Board to reflect the diversity of the communities we serve. We actively encourage applications from people of all backgrounds and experiences, including those who may not have held a trustee role before.

To arrange an informal chat with the Chief Executive and the Chair of Trustees, please email recruitment@actionpf.org

Click here to apply.

For more information, read our job description pack.

1efc6205-38f6-2e48-92f9-b4abe6a494f7 flex-box col-100 1

90e02cf5-a3de-fe43-2f87-9b6df672158c col-100 0

Trustee (Healthcare Professional)

Location: Hybrid (Peterborough) | Role: Voluntary, with expenses paid

chevron_rightkeyboard_arrow_up

Action for Pulmonary Fibrosis (APF) Hybrid (UK-wide) | 4 Board meetings per year + occasional subcommittee involvement

Are you a healthcare professional who wants to use your expertise to create real, national impact?

Action for Pulmonary Fibrosis (APF) is the UK’s leading charity for people affected by pulmonary fibrosis. We are currently recruiting multiple Trustees from healthcare backgrounds to strengthen our Board and help shape the future of care, support and research.

Why join APF?

Pulmonary fibrosis presents complex challenges across diagnosis, care pathways and long-term management, with persistent variation in access and outcomes across the UK.

At APF, we work closely with patients, clinicians and partners to improve support, drive research, and influence national policy and care standards.

As a Trustee, you will help ensure our work is grounded in real-world healthcare experience, shaping decisions that improve services, strengthen clinical engagement, inform our research strategy, and deliver meaningful change for people affected by pulmonary fibrosis.

Who we’re looking for

We are particularly keen to hear from people who bring one or more of the following:

Clinical practice experience in pulmonary fibrosis / ILD care
Research expertise, including clinical research, trials, or academic work
Health information or education experience, helping patients understand and navigate care

We warmly welcome applications from across the healthcare system, including:

Doctors, nurses, allied health professionals such as physiotherapists, occupational therapists and dietitians, pharmacists, public health professionals and NHS leaders.

The role

As a Trustee, you will:

Help shape APF’s strategy and long-term direction
Ensure strong governance, accountability and financial oversight
Bring your professional insight into Board discussions
Help us understand patient pathways, clinical realities and system challenges
Support our work to influence policy, improve care pathways and reduce inequalities
Contribute to subcommittees or projects where your expertise is most valuable

Time commitment

~4 Board meetings per year, two in person and two virtual, Saturdays 10am to 3pm
Preparation time for meetings
Occasional participation in subcommittees or advisory work, depending on your expertise

This is a voluntary, unpaid role. Reasonable expenses are reimbursed.

Our commitment to inclusion

To arrange an informal chat with the Chief Executive and the Chair of Trustees, please email recruitment@actionpf.org

Click here to apply.

For more information, read our job description pack.

5ca4f61e-aba0-56c4-b478-f2d185b528a0 flex-box col-100 2

01eba2d9-b17f-fcb1-9b27-6d78913b461b col-100 0

Senior Challenge Fundraising Officer

Peterborough (Hybrid) | Full-time, permanent

chevron_rightkeyboard_arrow_up

Senior Challenge Fundraising Officer | Peterborough (Hybrid) Full-time, permanent

Location: Peterborough (Hybrid)

Salary: £31,000 - £34,500 per year

Hours: Full-time, permanent

Closing date: Friday 19 June at 23:30

Role purpose

The Senior Challenge Fundraising Officer will lead the delivery and growth of APF’s third-party and mass participation challenge events portfolio. This role exists to significantly grow income and participation by managing end-to-end third-party challenge events, developing community-facing charity-owned fundraising products and delivering excellent supporter stewardship.

Working closely with the Head of Fundraising and colleagues across Communications, Services and the Operations Team, you will increase recruitment, empower supporters to raise ambitious funds, and create journeys that encourage long-term engagement with APF.

Success in this role means more people fundraising for APF, raising more income and feeling valued, supported and inspired to stay connected to our mission.

Key Responsibilities

1. Grow participation in third-party

Manage the full lifecycle of third-party and mass participation challenge events, from planning and recruitment through to stewardship and re-engagement.
Develop and execute creative marketing strategies to boost participation and attract new event participants.
Draft engaging promotional content that inspires and engages our supporters in collaboration with the Communications team.
Promote third-party events proactively across relevant channels and networks.
Work with the wider Fundraising team to improve and refine the stewardship journey for challenge participants to maximise the participant experience.
Identify and pursue opportunities to grow participation in new and existing events.
Attend key events as required, managing on-the day logistics and volunteer coordination.

2. Community Product Development

Work with Head of Fundraising to shape and improve APF’s fundraising offer and remote products.
Test and refine new fundraising concepts that increase accessibility and broaden participation.
Draft engaging promotional content that inspires and engages our supporters in collaboration with the Communications team.

3. Income growth and fundraiser empowerment

Inspire participants to achieve ambitious fundraising targets through engaging, creative communications.
Develop and enhance fundraising materials, including participant packs and digital resources to support our fundraisers.
Use insight and sector trends to identify opportunities to boost event visibility and maximise fundraising efforts.
Monitor fundraising performance to ensure we’re meeting targets and delivering strong ROI on our challenge activities.

4. Stewardship and re-engagement

Foster personal connections with supporters through thoughtful, tailored stewardship that keeps them engaged and feeling valued.
Create clear re-engagement plans to encourage repeat participation and long-term loyalty.
Collaborate with wider Fundraising and Services teams to support acquisition and ensure our supporters have a smooth, high-quality supporter journey.
Represent APF publicly when required, acting as a confident ambassador for the charity at events and in public settings.

5. Data, insight and compliance

Support on the management of CRM data to enable accurate segmentation, performance tracking and reporting.
Monitor recruitment, participation, income and ROI to help inform future planning and improvements.
Maintain up-to-date knowledge with GDPR regulations and compliance and ensure personal data is handled responsibly and securely.
Work closely with the Governance and Operations Manager to ensure our fundraising activities are fully compliant with GDPR and the Code of Fundraising Practice.

Click here to apply.

For more information, read our job description pack.

a1677949-527f-5aa7-5c0c-5e854fc16664 flex-box col-100 3

dc138a56-5144-e281-3919-025e4344e19d col-100 0

Head of Research and Involvement

Peterborough (Hybrid) | Full-time or part-time, permanent (full-time 37.5 hours a week or part-time 30 hours)

chevron_rightkeyboard_arrow_up

Head of Research and Involvement | Full-time or part-time, permanent (full-time 37.5 hours a week or part-time 30 hours)

Location: Peterborough (Hybrid)

Salary: £50,000 - £55,000 per year

Hours: Full-time or part-time, permanent (full-time 37.5 hours a week or part-time 30 hours)

Closing date: Saturday 27 June

Role purpose

The Head of Research and Involvement is a senior leadership role responsible for shaping and delivering APF’s research and involvement ambitions. The role will lead the development and delivery of a new research strategy, oversee APF’s research funding portfolio, and embed meaningful involvement of people affected by pulmonary fibrosis across the organisation’s work.

The postholder will provide strategic leadership across research, involvement and external partnerships, strengthening APF’s influence within the UK and global research landscape.

This is a highly visible role, representing APF with researchers, clinicians, funders, industry partners and the third sector.

As a member of APF’s Organisation Leadership Group, the Head of Research and Involvement will contribute to organisational leadership, supporting cross-team delivery of strategic priorities, organisational planning, risk management and continuous improvement.

Key Responsibilities

Strategic Leadership

Lead the development, delivery and evaluation of APF’s research strategy in line with the organisation’s five-year strategy, working closely with the Director of Policy, Research and Involvement and the Chief Executive.
Lead the strategic direction for involvement, ensuring lived experience meaningfully informs APF’s strategy, delivery and governance.
Provide expert strategic advice to the Senior Leadership Team on research and involvement opportunities, risks and emerging developments.

Research Funding and Governance

Lead and oversee APF’s full research funding portfolio, including small travel grants, mid-level direct impact grants, and large multi-year awards (including fellowships and direct funding).
Lead the development and continuous improvement of APF’s research funding offer, ensuring schemes are competitive, impactful and aligned with organisational priorities.
Develop and maintain robust research funding procedures, ensuring transparency, fairness and compliance with AMRC best practice and charity governance standards.
Oversee research governance structures, including research funding and advisory committees, ensuring effective reporting, assurance and escalation to the Board.
Monitor delivery, outputs and impact of funded research, ensuring effective grant management, learning and accountability.
Work with former grant and fellowship recipients to establish and maintain an alumni network that supports collaboration, learning, advocacy and future funding opportunities.

Research Communications and Education

Monitor national and international research developments relevant to pulmonary fibrosis and respiratory health, identifying emerging trends and opportunities.
Translate complex research activity and findings into clear, accessible updates for internal and external audiences.
Lead the development of public-facing research materials, including web content, leaflets, impact reports and other communications assets.
Work closely with the Communications team to ensure research activity is regularly communicated through press releases, digital channels and social media.
Act as an APF spokesperson on research matters where appropriate, supporting media engagement and public understanding.
Support education and engagement activity for people affected by PF, including talks, presentations and events focused on research and innovation.
Provide internal briefings and training for staff and volunteers on APF’s research activity and wider PF research developments.

Involvement

Champion involvement as a core organisational principle, ensuring lived experience shapes APF’s strategy, delivery and decision-making at all levels.
Lead the development, implementation and evaluation of systems, processes and standards that support high-quality involvement activity.
Grow and develop the involvement function as a high-quality internal and external service, supporting APF teams and external research partners.
Ensure staff are supported and trained to meaningfully and safely involve people affected by PF.
Ensure involvement activity contributes to agreed income generation targets (where appropriate) and delivers demonstrable value and impact.

Partnerships, Pharma and Income Generation

Build and sustain strategic relationships with UK and international research centres, study sites and academic institutions to strengthen the pulmonary fibrosis research ecosystem.
Develop and maintain strong relationships with pharmaceutical and life sciences organisations, positioning APF as a credible and trusted research partner.
Facilitate connections between researchers, study sites and industry partners to support high-quality PF research and collaboration.
Work closely with the Fundraising team to support income generation for research and involvement activity, including partnership development and funding opportunities.

Partnerships, Pharma and Income Generation

Lead, support and develop a high-performing Research and Involvement team, fostering a culture of collaboration, learning and continuous improvement.
Provide clear leadership, objectives and performance management for direct reports, supporting wellbeing and professional development.
Contribute to organisation-wide leadership, including resource planning, safeguarding, risk management and organisational change.
Lead the development of robust impact reporting for research and involvement activity, tailored for the Board, funders, partners and the wider public.
Ensure research impact evidence is used to inform strategy, funding decisions and future income generation opportunities.

Click here to apply.

For more information, read our job description pack.

7eb52ccd-50a1-3d04-5d19-87e655528dd3 flex-box col-100 4

Tab ID:138