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Transforming PF care

We're very excited to share that 1270 people added their voice to the call for transformational change in PF services across the UK.

This makes the PF State of the Nation Survey the largest PF lived experience survey ever conducted in the UK.

Your input is helping us to show decision-makers that those living with PF need change, and need it now. If you would like to read about the results of the survey, please visit the Survey and Reports page for the full report, short summary, and key statistics.

Alternatively, read our news piece of the report.

If you have any questions, please don't hesitate to reach out to the team at policy@actionpf.org.

Thanks to your feedback - the Optimum Integrated Care Pathway for ILD Services in England!

You spoke, we listened. Together we demand change. Last year over 1,000 people affected by PF responded to our survey. The feedback, shared in our 'I wish it was Cancer' report, clearly showed that urgent action is needed.

We're taking a stand to make sure that everyone with PF in the UK gets faster diagnosis, better access to treatment, and the support they deserve, no matter where they live.
We're taking action to overcome the challenges of delayed diagnosis, poor communication, and barriers to essential services.
We're reshaping ILD services to meet the true needs of those impacted by PF.

Keep up to date with our work by signing up for our newsletter.

Driving positive change for those affected by PF

Influencing in action

Stay connected with APF

Be a part of transforming ILD services

Information for healthcare professionals

Share your experience and create change

Not found what you are looking for?

Get in touch at policy@actionpf.org

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