Eastbourne ILD Support Group

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Holidaying with pulmonary fibrosis
When you’re living with pulmonary fibrosis (PF), going on holiday might need a bit more planning and preparation. We’ve written this guide to help you think about your needs so you can enjoy your holiday.

Read more about holidaying with PF.

Being diagnosed and living with a lung condition can be challenging. Support groups offer the opportunity to meet others who understand what you are going through and are open to anyone affected by pulmonary fibrosis - patients, family, carers and friends.

We have a range of speakers on topics such as singing for lung health, keeping active, healthy eating, mental wellbeing, travel insurance and the latest news in research and treatments. Specialist staff are sometimes available for information and advice, and we also arrange informal social events from time to time. Why not come to one of our meetings and check us out?

Patients, family and friends are welcome to attend. This is an opportunity to meet other people in a similar situation and learn about ILD and how to manage your lung condition.

 

Contact details

Rosie Boorsma,

Specialist Respiratory Practitioner Nurse (ILD Link)

R.E.S.P.S Team

esht.ildsupportgroup@nhs.net

07970 326689

When we meet

Face to Face meetings take place quarterly, generally the 2nd Friday of the month (January, March, June and September)

Upcoming dates

Every 3 months face to face ,

Confirmation of attendance is essential via the email :esht.ildsupportgroup@nhs.net

Next Eastbourne Support Group atSt Wilfred's Hospice, Eastbourne BN22 9PZ 2-4pm on:  

10 January 2025 2-4pm

14thMarch 2025 2-4pm

20th June 2025 2-4pm

12th September 2025 2-4pm

Where we meet

St Wilfred's Hospice,

1 Broadwater Way

Eastbourne

BN22 9PZ

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