What next?
What next?
About this study
Pulmonary rehabilitation is a specialised program tailored for individuals with chronic lung conditions. This approach combines exercise and education to enhance physical endurance and help to reduce breathlessness.
By focusing on improving the ability to engage in physical activity, it aims to alleviate symptoms, boost self-confidence, and enhance emotional well-being. Self-referral allows patients to access NHS services without needing a prior GP appointment.
As part of the NHS primary care access recovery plan, approximately 180,000 more people each year will be able to self-refer for services.
This study aims to explore the opinions of people living with chronic lung conditions about self-referral to pulmonary rehabilitation.
There are many different types of research. These studies might ask participants to test different treatments, devices, or complete questionnaires. Some studies may not require any involvement from people affected by PF, but instead look at cells in a lab environment, animal models, or utilise computer modelling.
A study involving people can be:
- Interventional – participants are given an active treatment decided by researchers. This could be a change in medication or lifestyle (e.g. exercise, diet, complementary wellbeing therapy, or symptom management). These are commonly known as clinical trials.
- Observational – participants are assessed for specific changes over time, but researchers do not alter their standard treatment or care (e.g. questionnaires to understand the impact of symptom, or patient registries that track trends in how disease affects people or the services that are provided).
There are 3 main phases of clinical trials:
- Phase 1 is the earliest stage of research, where there is often a focus on understanding if the treatment is safe or if it causes any side effects.
- Phase 2 still focuses on safety and side effects, but also tries to find out more about what is the best dose.
- Phase 3 often compares the new treatment to existing treatments or lookalike medications.
As drugs or interventions move into the different phases, the number of people taking part will increase. Not all studies will make it to the later phases, especially if the intervention is not found to be safe or effective in phase 1 and 2.
The recruitment aim is the number of people that researcher want to take part in the research study.
What is involved?
You will be asked to fill out an anonymous online survey. The survey will consist of a number of questions and will take approximately 5 minutes to complete. The questions relate to your opinions about self-referral to pulmonary rehabilitation.
To take part in the survey, please visit the online form.
Summary of involvement
Short online survey
Can I take part?
You will be able to take part if you have a diagnosis of a chronic lung condition, including any form of pulmonary fibrosis.
In research studies, there are lots of different reasons why you may or may not be able to take part. These are known as inclusion and exclusion criteria (see list below). Only the research team will be able to fully determine whether you are able to take part in the study. You can withdraw at any point.
If you are not able to take part in this research study, there may be other opportunities for you to take part in different studies.
To find out more about other research opportunities visit our research finder main page.
Diagnosed with a chronic lung condition, including any form of pulmonary fibrosis.
You are not living with a chronic lung condition
What difference could taking part make?
Taking part voices your opinion for being able to self refer to pulmonary rehabilitation, to cut down wait times in GP practices and provide a faster more efficient services to those needing to access pulmonary rehabilitation.
Where does the study take place?
Study locations
Online
How to take part
To take part in the survey, please take a look at the survey link.
Further information
This page is a summary which provides information about an opportunity to participate in research. More detailed information about the study can be found via the following the links and through contacting the research team.
If you have any questions about this research study, please speak to your medical team.
2330251@brunel.ac.ukThis study is supported by
APF does not endorse or recommend any specific study. All responsibility for the study remains with the sponsors and investigators.
Every effort is made to keep these details up to date. If you are aware of any inaccuracies, please email research@actionpf.org