What next?
What next?
About this study
Pulmonary rehabilitation is an exercise and education program that is recommended for people with certain chronic respiratory diseases, including pulmonary fibrosis.
Pulmonary rehabilitation classes often run over several weeks or months and can help patients to manage symptoms and cope with the effects of breathlessness on daily living activities. However, participation and completion of pulmonary rehabilitation often faces many different barriers.
The aim of this study is to design a financial incentive scheme to improve pulmonary rehabilitation referral, uptake and completion among people with chronic respiratory conditions and to design a study to investigate this scheme works.
There are many different types of research. These studies might ask participants to test different treatments, devices, or complete questionnaires. Some studies may not require any involvement from people affected by PF, but instead look at cells in a lab environment, animal models, or utilise computer modelling.
A study involving people can be:
- Interventional – participants are given an active treatment decided by researchers. This could be a change in medication or lifestyle (e.g. exercise, diet, complementary wellbeing therapy, or symptom management). These are commonly known as clinical trials.
- Observational – participants are assessed for specific changes over time, but researchers do not alter their standard treatment or care (e.g. questionnaires to understand the impact of symptom, or patient registries that track trends in how disease affects people or the services that are provided).
There are 3 main phases of clinical trials:
- Phase 1 is the earliest stage of research, where there is often a focus on understanding if the treatment is safe or if it causes any side effects.
- Phase 2 still focuses on safety and side effects, but also tries to find out more about what is the best dose.
- Phase 3 often compares the new treatment to existing treatments or lookalike medications.
As drugs or interventions move into the different phases, the number of people taking part will increase. Not all studies will make it to the later phases, especially if the intervention is not found to be safe or effective in phase 1 and 2.
The recruitment aim is the number of people that researcher want to take part in the research study.
What is involved?
During the study, the researchers will interview 16 people with chronic lung conditions, including those with pulmonary fibrosis, and 16 healthcare professionals and clinical commissioners to understand what is thought about using financial incentives to encourage participation in pulmonary rehabilitation. The interviews will be done online (e.g. a software programme like Zoom) or by telephone, depending on your preference, and will last 30-40 minutes. If you wish, your carer or family member can also attend the interview.
After the interviews, the research team will hold two online workshops, which will last two hours, to develop the financial incentive scheme. You have the option of putting your name forward to attend these workshops and the researchers will select two people to join the workshop.
After the first workshop, the researchers will hold a one-hour online meeting for people with lung conditions, and a separate one for healthcare professionals and clinical commissioners, to share what the financial incentive scheme may look like and to get your feedback. If you don’t use the Internet, the researchers will ask your opinion by telephone.
Summary of involvement
30-40 minutes interview
Online workshops
All participants will be invited to an online meeting to share the information that the researchers have gathered
Can I take part?
You may be able to take part if you have a chronic lung condition, such as pulmonary fibrosis, and have access to the internet or a telephone.
In research studies, there are lots of different reasons why you may or may not be able to take part. These are known as inclusion and exclusion criteria (see list below). Only the research team will be able to fully determine whether you are able to take part in the study. You can withdraw at any point.
If you are not able to take part in this research study, there may be other opportunities for you to take part in different studies.
To find out more about other research opportunities visit our research finder main page.
Diagnosis of a chronic respiratory disease
Those who don't have access to either the internet or the telephone
What difference could taking part make?
Taking part in this study will help researchers to understand if a financial incentive scheme could improve pulmonary rehabilitation referral, uptake and completion among people with chronic respiratory conditions.
Where does the study take place?
Study locations
Anywhere is the UK
How to take part
If you would like to discuss the research study or find out more information, please contact the research team. You can do this by emailing: Coin_Study@brunel.ac.uk or phone +44(0)1895 265949 and leave a message. The research team will return your call as soon as they can.
Further information
This page is a summary which provides information about an opportunity to participate in research. More detailed information about the study can be found via the following the links and through contacting the research team.
If you have any questions about this research study, please speak to your medical team.
Coin_Study@brunel.ac.ukThis study is supported by
APF does not endorse or recommend any specific study. All responsibility for the study remains with the sponsors and investigators.
Every effort is made to keep these details up to date. If you are aware of any inaccuracies, please email research@actionpf.org