Search
Search
Login
  • Register
Action Pulmonary Fibrosis (APF)
  • Information & Support
    keyboard_arrow_down
    • For people who are:
    • stethoscopeNewly Diagnosed
    • manLiving with PF
    • front_handCaring for someone
    • Information
    • chevron_forwardCoronavirus Hub
    • chevron_forwardWhat is Pulmonary Fibrosis?
    • chevron_forwardTypes of Pulmonary Fibrosis
    • chevron_forwardTreatments
    • chevron_forwardBenefits
    • chevron_forwardOxygen
    • chevron_forwardHave I got PF?
    • chevron_forwardInformation resources
    • chevron_forwardWebinars
    • Support
    • chevron_forwardSupport line
    • chevron_forwardSupport groups
    • chevron_forwardSpecialist ILD centres
    • chevron_forwardInsider Magazine
    • Personal stories
  • Get Involved
    keyboard_arrow_down
    • chevron_forwardAwareness Month 2025
    • chevron_forwardFundraise for us
    • chevron_forwardImprove PF Care
    • chevron_forwardLeave a gift in your will
    • chevron_forwardGive in memory
    • chevron_forwardDonate today
    • chevron_forwardWeekly lottery
    • chevron_forwardShop
  • Healthcare Professionals
  • Research
    keyboard_arrow_down
    • Take part in research
    • chevron_forwardWhat is research?
    • chevron_forwardFind a study
    • chevron_forwardFAQs
    • chevron_forwardResearch stories
    • Our research
    • chevron_forwardAPF research
    • chevron_forwardResearch priorities
    • chevron_forwardSupport for researchers
    • chevron_forwardDonate to research
    • Research news
  • About Us
    keyboard_arrow_down
    • chevron_forwardAbout our charity
    • chevron_forwardNews
    • chevron_forwardOur strategy
    • chevron_forwardSurveys and reports
    • chevron_forwardPeople
    • chevron_forwardJobs
    • chevron_forwardAnnual Reports
    • chevron_forwardContact us
search Donate
Sign up to the APF Newsletter to keep informed about our latest workarrow_forward
Personal stories

Robert and the Idiopathic pulmonary fibrosis cough

Robert, 70 from Lincolnshire, was diagnosed with IPF in 2020, he speaks about the impact of the persistent pulmonary fibrosis cough and ways of managing it.

In the beginning it was just like a typical winter cough but it just wouldn’t go away.  In fact it got worse. Eventually, I began suffering bouts of coughing that would lead to retching and choking to the extent I was desperately fighting to catch a breath.  

These bouts of coughing would be triggered randomly by things like eating, playing with the dog, over exerting myself, and even laughing and joking would start me off.

But after time I learned to manage my activities to reduce the risks of triggering a coughing fit.

When suffering one of these serious coughing fits, I became very distressed.  I pride myself in being a strong character but on more than one occasion I would be on the verge of tears as a result.  These coughing fits would leave me physically drained, almost to the point of exhaustion and it would take me quite a long time to recover.

On a number of occasions I’ve felt judged for having a cough.  

Even though you explain to people what your medical situation is, the accusative looks are enough to make you feel guilty to the extent you can think some pretty nasty thoughts about the person(s) looking at you.

‍What helps your cough? 

I now understand my limitations and avoid the known triggers. There is medication out there that can help and along with self learning/help i.e. understanding your limitations and avoiding the triggers helps manage things to almost normal.  

I find that pre-empting any unpleasantries by explaining to people about your cough, before you start coughing, helps with their understanding – enormously!

> Information on managing a pulmonary fibrosis cough

> Pulmonary fibrosis cough research

APF

01733 839642

info@actionpf.org

call

Support line
01223 785725

article

Sign up for
our newsletter

Contact About us Jobs News Donate

England & Wales Charity Registration Number: 1152399, Scotland Charity Registration Number: SCO50992

Privacy Policy
Cookie Preferences
Funding Regulator
Copyright 2026 by APF
Terms Of Use | Privacy Statement