A big thank you from all of us here at Action for Pulmonary Fibrosis to everyone who took part in our 2023 patient survey. We have been blown-away by the incredible response. Over 1,000 people took part either completing the survey online or through focus groups. You are amazing.
You have shared your stories of inspiration, despair, frustration, and hope, sending your voice loud and clear about why this big piece of work to improve NHS care for people with pulmonary fibrosis is so desperately needed.
Now the work begins. Once we have read through every response to the survey, we’ll gather your experiences and our thoughts together, and plan the next steps.
Please keep checking back for further updates.
Thank you again.