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OneVoiceILD

Not everyone with the disease has timely access to the treatments, care and support they need to live well for longer. We want to change this.

By adopting an Integrated Care Pathway for optimum ILD care, a collaborative development by the OneVoiceILD movement, you can help to ensure those with PF receive the care they need when they need it.

Getting the most from your ILD service

Improving pulmonary fibrosis care together

OneVoiceILD is a growing network striving to improve treatment, care and support for people affected by pulmonary fibrosis. We’re addressing the issues that people with pulmonary fibrosis are most concerned about and finding solutions to these problems. We aim for everyone affected by pulmonary fibrosis to have a better quality of life and longer life expectancy.

Creating Transformational Systems Change

We're very happy to announce the launch of a ground-breaking report and optimum Integrated Care Pathway for ILD, which addresses system-wide challenges and sets out a long-term vision for the future of PF care.

Read the Integrated Care Pathway report and find out how to get involved

It’s also an exciting time for OneVoiceILD as we’re now formalising the movement with a Steering Group, and retaining a holistic view of services through the inclusion of a Lived Experience Panel.

Our Current Priorities

Raise awareness of pulmonary fibrosis with parliamentarians who can support our mission.
Gather data to build an accurate picture of the care received by people living with pulmonary fibrosis and the impact on their quality of life.
Develop the gold standard in care that will help clinicians and people living with pulmonary fibrosis know what to expect from pulmonary fibrosis care and when to expect it.

Key concepts from the #OneVoiceILD meeting in Feb 2023. (Click for full size image)

Over the next few months, there’ll be opportunities to get involved with #OneVoiceILD to help us bring the change we all want to see.

Why We Need You

We see stories similar to Mohammed’s far too often. Help us make pulmonary fibrosis care equitable for all.

Keep up-to-date and find out how you can get involved by signing up for the #OneVoiceILD mailing list.

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