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Navigating PF

Welcome to Navigating PF – our series of educational resources for anyone looking to learn more about the pulmonary fibrosis journey.

These resources have been designed for people who have been recently told that they (or a loved one) have pulmonary fibrosis, but registration is open to anyone interested in learning more.

If you have questions or would like support accessing any of the resources included here, please call our Support Line team on 01223 785 725. We’re open 9-5, Monday to Friday.

Lady in green flower pattern shirt clasping hands

Navigating Pulmonary Fibrosis (Booklet)

This booklet is an updated version of our Recently Diagnosed Information Pack. It covers:

about Action for Pulmonary Fibrosis (APF)
what pulmonary fibrosis (PF) is
questions to ask your healthcare team
coming to terms with your diagnosis
telling friends and family
support available from APF.

You can download your copy online or order a print copy.

Navigating PF: At Your Pace (online course)

Our online short course, where a range of experts and people living with pulmonary fibrosis will guide you through six sections:

Welcome
An introduction to pulmonary fibrosis
Coming to terms with your diagnosis
How to tell friends and family
Support available from Action for Pulmonary Fibrosis (APF)
Quiz and feedback

You’re invited to work through the content at your own pace, with no time limit and no limit on how many times you can view each section.

An Introduction to Navigating the PF Journey (webinar)

Our recurring webinar, where a panel of experts will talk you through:

The basics of pulmonary fibrosis, including what it is, and the main signs and symptoms.
Coming to terms with your diagnosis and things you can do to make this easier.
Tips on how to tell people about your diagnosis.
The support available from Action for Pulmonary Fibrosis for you and your loved ones throughout your PF journey.

You’ll also have the opportunity to get your questions answered.

Upcoming sessions:

Wednesday 7th October 2026, 3.00 - 4.00pm. Register here.

Frequently Asked Questions:

What’s the difference between the course and the webinar?

The content is very similar between the two formats.They both cover the same topics and follow a similar structure.
In both options, you’ll hear from healthcare professionals and people living with pulmonary fibrosis, and you’ll receive additional resources to look at in your own time.
The webinar offers you the opportunity to join the experts live and ask them your questions directly, but the sessions aren’t recorded so you won't be able to go back and re-watch the content.
The course allows you to revisit the content as many times as you need.

Can I register for both?

Yes! You are welcome to register for both options.

I’m struggling to register, can you help?

If you’re struggling to register via our online registration form, you can call our Support Line team and they will be happy to register you over the phone. Our Support Line is available 9am to 5pm, on 01223 785 725.

I prefer printed information, do you have a recently diagnosed information booklet?

Yes, you can order our Recently Diagnosed Pack as either a digital download or a printed pack here.

Our website and resources provide general information only. We cannot provide medical advice, treatment or prescriptions, nor can we assess/decide what services or clinicians you should be referred to. Support with these matters will need to be provided by your existing healthcare professional teams.

APF is not responsible for any errors or omissions or for any loss or damage suffered by users resulting from the information published on our website or in our resources.

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